Input Mag:
In a study set to be published in the journal PLOS One, researchers from Penn State and Cornell University surveyed 2,020 people recruited through Qualtrics and questioned them based on interviews with officials at a dozen genomic governance organizations. The resulting reports, for those who wanted to participate, would provide detailed information on ancestry and risk forecasts for 20 genetically based health conditions.
Respondents could choose from one of four answers: “Willing as a charitable donation,” “Willing if I’m paid at least a certain amount of money,” “Unwilling, at least for now,” and “Unwilling, now or ever.”
Unsurprisingly, people were mostly down to share their data if there was money in it for them. Half of the participants said they would do so if compensated, compared to just 11.7 percent willing to do so as a simple act of charity. But, tellingly, 37.8 percent of participants were unwilling to provide their data whether they’d be compensated or not.
I never give up accurate data without getting something in return. You want me to fill out your survey? Pay me. No, not enter me into a draw. Straight up PAY ME.